Post New Topic

I know there is an LIW March of Babies Team but......

DNicholes Posted:

I know there is an LIW March of Babies Team but......

I joined a team on Long Island because of something that happened this week.....here is the story and if you'd like to donate or even walk with me, that would be SUPER :) (this is why I just wanted hugs yesterday, I didn't want to make the board sad hence my first deleted post)

This is my e-mail I had sent out:

This weekend we got terrible news, my friends Courtney and Bryan found out that their baby, which they have since named Grace is terminally ill. She has Spina Bifida as well as anecephaly which means that the baby's brain is not developing as well as the spinal cord has developed outside of the spine. Due to these complications the baby did not make it. Baby Grace is an angel now, and in her memory I am walking with the March of Dimes to help support the countless other babies and families out there who are dealing with similar situations.

The March of Dimes conducts research on spina bifida and our donations would help to further any research.

Directly from their website:
Several March of Dimes grantees are searching for genes that may contribute to spina bifida and other NTDs to develop new ways to prevent these disorders. Others are seeking a better understanding of how folic acid prevents NTDs, to make this treatment even more effective. One grantee is developing programs to prevent behavior and adjustment problems in children and adolescents with spina bifida.

Every dime counts, so please help.

Contributing to my march online is fast, easy and secure. You can donate directly from my personal webpage with a credit/debit card or PayPal. If you prefer, I can also accept cash or check. Just click the appropriate box on my webpage.

To get there copy and paste if link isnt clickable
http://www.marchforbabies.org/DPerotti
PegaLega Posted:

Re: I know there is an LIW March of Babies Team but......

Devon, im at work but I want to donate. I am so sorry to hear about baby Grace, it so sad My thoughts and prayers are with your friends
PeteysBride Posted:

Re: I know there is an LIW March of Babies Team but......

I'll donate. Doesn't matter what team you're on. its all for the same good cause! defiently try to get out there and walk and lots of love to that family. Its so hard losing a child-we lost my sisters but thats why this chairity is such an important one!

SusiBtoM Posted:

Re: I know there is an LIW March of Babies Team but......

Devon, you've got my support as well.

So sorry to hear about baby Grace. One more special angel in Heaven.
DeannaNDave07 Posted:

Re: I know there is an LIW March of Babies Team but......

my prayers are with you and your friends..im so sorry to hear this
Colette Posted:

Re: I know there is an LIW March of Babies Team but......

Its just terrible Devon, I am on pins and needles this week waiting for the results of this test myself, should have 'em by Friday but its a long wait. I read your first post and my heart just broke for Baby Grace and your friends; I hope your friends can get the strength they need to make it through this :(


I've donated to the cause as well, I so wish I could walk this year but I'm out of town that weekend. Hopefully I'll be able to do it next year though, with the spud...
hunnybunnyxoxo Posted:

Re: I know there is an LIW March of Babies Team but......

im so sorry to hear about your friend's baby!

I'd like to make a small donation as well...
futuremrsGafforio Posted:

Re: I know there is an LIW March of Babies Team but......

I'm so sorry for the family
DNicholes Posted:

Re: I know there is an LIW March of Babies Team but......

Thanks Ladies
kns11 Posted:

Re: I know there is an LIW March of Babies Team but......

So sad to hear the devastating news. Now it really makes sense why you needed a group hug and why barefooted BP were just so & & .
I'm walking & have donated as well .

Reply to this topic

Log in to reply or quote a post.