I know there is an LIW March of Babies Team but......
I joined a team on Long Island because of something that happened this week.....here is the story and if you'd like to donate or even walk with me, that would be SUPER :) (this is why I just wanted hugs yesterday, I didn't want to make the board sad hence my first deleted post)
This is my e-mail I had sent out:
This weekend we got terrible news, my friends Courtney and Bryan found out that their baby, which they have since named Grace is terminally ill. She has Spina Bifida as well as anecephaly which means that the baby's brain is not developing as well as the spinal cord has developed outside of the spine. Due to these complications the baby did not make it. Baby Grace is an angel now, and in her memory I am walking with the March of Dimes to help support the countless other babies and families out there who are dealing with similar situations.
The March of Dimes conducts research on spina bifida and our donations would help to further any research.
Directly from their website:
Several March of Dimes grantees are searching for genes that may contribute to spina bifida and other NTDs to develop new ways to prevent these disorders. Others are seeking a better understanding of how folic acid prevents NTDs, to make this treatment even more effective. One grantee is developing programs to prevent behavior and adjustment problems in children and adolescents with spina bifida.
Every dime counts, so please help.
Contributing to my march online is fast, easy and secure. You can donate directly from my personal webpage with a credit/debit card or PayPal. If you prefer, I can also accept cash or check. Just click the appropriate box on my webpage.
To get there copy and paste if link isnt clickable
http://www.marchforbabies.org/DPerotti
This is my e-mail I had sent out:
This weekend we got terrible news, my friends Courtney and Bryan found out that their baby, which they have since named Grace is terminally ill. She has Spina Bifida as well as anecephaly which means that the baby's brain is not developing as well as the spinal cord has developed outside of the spine. Due to these complications the baby did not make it. Baby Grace is an angel now, and in her memory I am walking with the March of Dimes to help support the countless other babies and families out there who are dealing with similar situations.
The March of Dimes conducts research on spina bifida and our donations would help to further any research.
Directly from their website:
Several March of Dimes grantees are searching for genes that may contribute to spina bifida and other NTDs to develop new ways to prevent these disorders. Others are seeking a better understanding of how folic acid prevents NTDs, to make this treatment even more effective. One grantee is developing programs to prevent behavior and adjustment problems in children and adolescents with spina bifida.
Every dime counts, so please help.
Contributing to my march online is fast, easy and secure. You can donate directly from my personal webpage with a credit/debit card or PayPal. If you prefer, I can also accept cash or check. Just click the appropriate box on my webpage.
To get there copy and paste if link isnt clickable
http://www.marchforbabies.org/DPerotti