how do i look up a specialist to help me with my pseudotumor? i am searchd the internet all night and can not seem to locate any info on doctors in the area that specialize..
does anyone know what i should do, i need to get a second opinion...
swags1016
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Re: I cant seem to find a specialist
What kind of doctor do you need? a neurologist?
Suzanne
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Re: I cant seem to find a specialist
I wanted a nuerologist that specialized in pseudotumorcerebri, or even just rare nuero disorders. and there is just NO where on the net for me to find this... and its killing me to look because i have a headache the size of the grand canyons..
swags1016
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Re: I cant seem to find a specialist
I called my cousin who is a nurse at Stony Brook to see if she has any recommendations. She will call me tonight!
Suzanne
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Re: I cant seem to find a specialist
OMG!!! thank you soooooo much!!! can i kiss you
I want a second opinion before they retap me or put a shunt in my head.. but my vision is not the best so i am scared and need to do something quick..
thank you sooooo much!!!!
WithThisRing
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Re: I cant seem to find a specialist
my nuerologist is awesome. Dr. Carlise St. Martin.
He is located here in Queens. I had to see him when I had my car accident. He has received many awards, graduated top of his class at Harvard, and he is such a people person. He is very caring, sweet and will talk your ear off. He makes you feel like you know him for 30 years.
If you want his phone number let me know.
Suzanne
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Re: I cant seem to find a specialist
Chippa that would be great if you could fm me the number...
WithThisRing
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Re: I cant seem to find a specialist
I sent it to you
Stacey1403
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Re: I cant seem to find a specialist
Suzanne send DaniRN a FM she may be able to put you on the right track also
Feel better
WithThisRing
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Re: I cant seem to find a specialist
PS whatever you do dont mention the movie 'waterworld'
He let me borrow the DVD of the movie and I never returned it to him...
swags1016
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Re: I cant seem to find a specialist
Suzanne,
Krissy just called and she is calling her girlfriend who is an attending on the Neuro floor at Stony Brook and hopefully she will be able to get back to me tonight.
Wendy
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Re: I cant seem to find a specialist
Suzanne I just looked too. From what I read this is something very specialized. My heart goes out to you. If Jamie's cousin is not able to recommend anyone, you might want to call the folks below. I think someone else might have posted this already, but here it is again. Since they are in New York perhaps they can lead you in the right direction.
Pseudotumor Cerebri Society 750 East Adams Street c/o Dr. D. Friedman Syracuse, NY 13210 Tel: 315-464-3937 Fax: 315-464-5006
I think it is wise for you to get a second opinion before you do anything else. I am sure with all the medical facilities in and around LI there has to be someone who specializes in Neuro Opthamology or who has dealt with this condition before. Hang in there!! We are all here for you.
DaniRN
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Re: I cant seem to find a specialist
I'll have FH talk to his brother. He is an ER doctor at Stonybrook and usually knows good specialists.
swags1016
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Re: I cant seem to find a specialist
I got a guy for you!!! She has heard of it and has worked with kids with it. They are recommending
Rafeal Davis
631-444-1210
Marcela1654
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Re: I cant seem to find a specialist
Have you done a search on your insurance companie's website? Or maybe you could call your insurance company? Good Luck
Latina511
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Re: I cant seem to find a specialist
Suzanne....my hubby has a neurologist (sp?) but I don't have a number right now. I will get back to you with it tomorrow.
mishandgerard
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Re: I cant seem to find a specialist
Because I have epilepsy I have seen several nuerologist. I am not sure if mine is a specialist in what you need, but I guess it is good to give him a call.
