After quite a long time spent wondering, the neurologist confirmed today that my 25 year old nephew has Huntington's Disease. We've been begging him for years to find out, but he didn't want to know, until he started seeing the signs himself, and he lost his balance and fell down a set of stairs in the subway and broke his ankle.
It is an extremely debilitating disease with no cure. The earlier the symptoms manifest, the shorter the life span.
His mom has been confined to a nursing home for the last 6 years, and no longer has any substantial cognitive brain function. She can't do anything at all for herself. She is only 52 years old. She didn't start showing signs until she was at least 10 years older than he is now.
My entire family is just beside themself with grief right now.
Wintersbride
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I am so sorry!!!
My prayers are w/ you and your family. It's a horrible disease. I pray for strength for you and your family
Goldi1021
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I am so sorry. I wish I knew the right thing to say but I don't. I am glad he has people like you in his life to take care of him.
BKtoLI
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I am so sorry!! You and your family are in my prayers! At least now he can get some help to cope with the disease.
xcalystax
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I am so sorry....
waterspout4
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They need your help and our prayers.
kmkelly
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So sorry to hear this. You and your family are in my prayers.
October Bliss
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Posted by Goldi1021
I am so sorry. I wish I knew the right thing to say but I don't. I am glad he has people like you in his life to take care of him.
Thanks Leslie! I'm his mom's health care proxy and I've spent the last month dealing with some complications that have arisen with her (she had surgery last week), and now this news on top of it.
Puts the whole ecru invitations into context.
October Bliss
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Posted by BKtoLI
I am so sorry!! You and your family are in my prayers! At least now he can get some help to cope with the disease.
Thanks Janna! After having fun helping you earlier, and then getting uninterrupted baby time, to get this news, just shot the day to heck!
Happybride2005
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cherryj24
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ChrissynRicky
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So sorry to hear this. I will keep you and your family in my prayers.
kissy27
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I am so sorry
Awhite80
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I am so sorry, although I know these words can never be enough. I wish your nephew and your famly the very best and you all are in my thoughts and prayers.
SIBride06
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OMG.. I am sooo sorry
glinda_goodwitch
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I'm so sorry
VogueBride
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im so sorry to hear of your news...you and your family are in my thoughts and prayers
smara
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My deepest sumpathy, I wish your nephew the best. You and your family are in my prayers.