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I just got back from the doctor and...........

Original post by HelenZ

he's testing me for lupus if any of you remember my post from a few weeks back when my primary care doc found that my ANA (antinuclear antibodies) test came back positive, today was my appointment with the rheumatologist......Dr. Porges in Roslyn- he went to Princeton & Cornell, and he seems like a great doctor, so that's comforting to know he should be able to properly diagnose me.

some of the reasons he thinks I might have lupus:

-positive result in the ANA test

-the sporadic numbness and changing in color (stark white to blue/purple) in my hands that I now know is called Raynaud's syndrome, this can be due to lupus

-my sensitivity to sunlight (can leave you blotchy from sun exposure not just sunburned, particularly in the face)

-lupus could also be a reason for the frequent headaches I get


he said I might just have a minor case of lupus, and then it could get worse later......but the scariest thing he told me is that lupus can also cause miscarriages. I know I don't know for sure yet if I have it, but its sooooo scary to hear that that is a possibility. Lupus is most prevalent in women 15-45 yrs old, it can be fatal and there is no cure.


I'm so scared.....DH went w/ me to the doctor and he just left to go to the Mets game and this is the first time I'm crying about it, I didn't want to seem so scared in front of him b/c I'm really hoping this is nothing.

I should get the test results in a week & a half to two weeks. Does anyone have info on lupus? or just some prayers for me!! thanks for reading all of this!!
DeannaNDave07 Posted:

Re: I just got back from the doctor and...........

Helen, im so sorry you are going through this.. i feel terrible.. just keep positive and know that they can treat you for it
Toots123 Posted:

Re: I just got back from the doctor and...........

I am sorry to hear that you're going through this. Please try to stay positive until you get all of your results.
tj2008 Posted:

Re: I just got back from the doctor and...........

I had a very similiar situation to yours 3 years ago I was diagnosed with a genetic skin cancer syndrome, i know it's very hard but keep your head up and feel free to fm if you need to talk....

SylvieB Posted:

Re: I just got back from the doctor and...........

I'm so sorry your going through this, stay positive!!
ant n tilde Posted:

Re: I just got back from the doctor and...........

Im so sorry!!! for you!

And if you ever need anything, I live so close - do NOT hesitate to FM me!!!!
Pinkiegirll07 Posted:

Re: I just got back from the doctor and...........

Helen
I'm so sorry you're going through this. Please FM if you need to talk. I'm praying that everything is ok!

Many hugs to you!
Dee606 Posted:

Re: I just got back from the doctor and...........

sending you lots of prayers
GinaZ Posted:

Re: I just got back from the doctor and...........

Im so sorry! I hope everything works out okay for you.

dgirl0114 Posted:

Re: I just got back from the doctor and...........

Sending good vibes your way, my name twin!!
And many, many hugs; keep us posted.
HelenZ Posted:

Re: I just got back from the doctor and...........

thank you so much ladies!! I'm feeling better already from yesterday, but that's also b/c I don't have any time to think about this today- I have to get ready for a wedding we're going to at George Washington Manor!! its such a beautiful day for a wedding!!

thanks again! you guys are awesome!!!
Mooshyboo Posted:

Re: I just got back from the doctor and...........

I hope the results come back ok ~ Heatherrose was just diagnosed with Lupus... You are in my thoughts & think positive!
kabo0831 Posted:

Re: I just got back from the doctor and...........

i work for a rheumo. and she tells me that it is genetic. Do anyone in you family have it?
ksl268 Posted:

Re: I just got back from the doctor and...........


Posted by kabo0831

i work for a rheumo. and she tells me that it is genetic. Do anyone in you family have it?



This is true as far as I know ....but Lupus can also manifest in several forms from what I understand. Some can affect the skin and other's the organs. So it's possible that family members may have conditions related to lupus and not know for many years.

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