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I just got back from the doctor and...........

HelenZ Posted:

I just got back from the doctor and...........

he's testing me for lupus if any of you remember my post from a few weeks back when my primary care doc found that my ANA (antinuclear antibodies) test came back positive, today was my appointment with the rheumatologist......Dr. Porges in Roslyn- he went to Princeton & Cornell, and he seems like a great doctor, so that's comforting to know he should be able to properly diagnose me.

some of the reasons he thinks I might have lupus:

-positive result in the ANA test

-the sporadic numbness and changing in color (stark white to blue/purple) in my hands that I now know is called Raynaud's syndrome, this can be due to lupus

-my sensitivity to sunlight (can leave you blotchy from sun exposure not just sunburned, particularly in the face)

-lupus could also be a reason for the frequent headaches I get


he said I might just have a minor case of lupus, and then it could get worse later......but the scariest thing he told me is that lupus can also cause miscarriages. I know I don't know for sure yet if I have it, but its sooooo scary to hear that that is a possibility. Lupus is most prevalent in women 15-45 yrs old, it can be fatal and there is no cure.


I'm so scared.....DH went w/ me to the doctor and he just left to go to the Mets game and this is the first time I'm crying about it, I didn't want to seem so scared in front of him b/c I'm really hoping this is nothing.

I should get the test results in a week & a half to two weeks. Does anyone have info on lupus? or just some prayers for me!! thanks for reading all of this!!
Cpt2007 Posted:

Re: I just got back from the doctor and...........

don't know much if anything about it, but sending you lots of and
soon2bmrsVPT Posted:

Re: I just got back from the doctor and...........

FM heatherrose


I was tested for it years ago. It was negative, but I was handed another disease instead


You will be okay- I know,it's scary.. Try to keep your chin up. Keep us posted!

MrsQ-in2007 Posted:

Re: I just got back from the doctor and...........

Many hugs to you! Just earlier today HeatherRose posted that she was just diagnosed with Lupus. She may have more info for you and in that post some ladies posted links to helpful sites.

I pray everything turns out ok for you!
MrsQ-in2007 Posted:

Re: I just got back from the doctor and...........

Here's the link to Heather's post from earlier today.



LINKY HERE
Colette Posted:

Re: I just got back from the doctor and...........

OMG Helen, first of all x 1,000,000 to you tonight, OK?

Its totally ok to cry, it must be very scary! I think lovely HeatherRose had a similar situation today, this just s*cks for you both!!!
I do know though that the chance of miscarriage (while higher than 'average') isn't what anyone would call 'high' in general. When you're going to TTC just make sure your docs know all about the condition and have some experience with patients who have had it.

I just know you're going to be OK, and I know DH is going to be a ROCK of support for you so don't hesitate to let him be that!!!! Just hang in there until the tests are all done and there's a treatment plan in place.

And hop on here any time you're feeling worried, hon; I am sending out all my prayers for you today
HelenZ Posted:

Re: I just got back from the doctor and...........

thanks guys!! I haven't been on at all today since we were running around after the doctors appointment. I'm going to read her post now!

MeNBobs Posted:

Re: I just got back from the doctor and...........

Sorry Helen. Having to wait so long to find out for sure must be the worst part. I will be thinking of you. Lots of prayers and good thoughts are coming your way .
PaddysGirl15 Posted:

Re: I just got back from the doctor and...........

good thoughts and prayers Helen
ligirlz Posted:

Re: I just got back from the doctor and...........

I am so sorry you are going through all this testing. Hopefully they give you the answers you need. Here are some and for you. Keep us updated to what they found.
PegaLega Posted:

Re: I just got back from the doctor and...........

Helen, sending you good vibes
diva7531 Posted:

Re: I just got back from the doctor and...........






good luck, I hope the tests come back OK!
EverlovingEv Posted:

Re: I just got back from the doctor and...........

Hey Helen,
I'm so sorry. I have A LOT of info but way too much to post here. Please feel free to ask me any questions you may have.

Aug07OFCbride Posted:

Re: I just got back from the doctor and...........

pls keep us updated, helen!!! many many !!!!

DNicholes Posted:

Re: I just got back from the doctor and...........

Sending some good vibes.....

Please keep us posted
GettinHutched Posted:

Re: I just got back from the doctor and...........

Oh Helen....I'm so sorry you're going through this....please keep us updated and we'll keep
What Posted:

Re: I just got back from the doctor and...........

HamptonsBride Posted:

Re: I just got back from the doctor and...........

sorry you are going through this...hopefully the DR will gave good news!
PeteysBride Posted:

Re: I just got back from the doctor and...........

Oh Helen...Sorry you are going through this...MAybe FM Helen Rose because she is going through the same thing according to ehr last post poor girl. She might be able to calm you better than we can with more facts about it. I unfrotutanely do not know much about lupus but I am seding you lots of prayers! Keep us updated!
AllJoy Posted:

Re: I just got back from the doctor and...........

I'm sorry to hear this Helen. Sending you good thoughts.

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