Good thoughts for my dad

Original post by Future Mrs H

Apr 28, 2010 05:58 PM

I am asking the the LIW good vibes for my dad. He has a rare skin disease called Mycosis Fungoides. Its a cutaneous T-cell lymphoma and he has had it for about 15 years. it has been kept in check with this certain medicine that he uses, but now his insurace comp has stopped covering it. If he has to pay for this medicine it will cost almost $6000.00 a month. He has been fighting with the insurance company and they keep turning him down. As soon as he stops using this medicine it start reappearing right away. I am so afraid if he cant get this covered that this will start to turn into tumors.

So I am asking ladies, please send your good vibes that the insurance comp will have it in their heart to start covering him again.

MrsS2be Posted: Apr 28, 2010 07:53 PM

Re: Good thoughts for my dad

JoanneAndJustin Posted: Apr 28, 2010 07:55 PM

Re: Good thoughts for my dad

Good vibes for dad!!!!

JennandAnthony Posted: Apr 28, 2010 07:58 PM

Re: Good thoughts for my dad

Becca2010 Posted: Apr 28, 2010 08:00 PM

Re: Good thoughts for my dad

Insurance companies really freaking scuk

Soon2BMrsAlini Posted: Apr 28, 2010 08:00 PM

Re: Good thoughts for my dad

Posted by Future Mrs H

Posted by JLWSJC

I'm really sorry he's going through this...

I did a legal internship for the MEdicare Rights Center in NYC. They are a non profit and have a hotline where anyone nationwide with medicare can get free information or advocacy help.

You can call on his behalf or he can call himself. 1-800-333-4114

I've seen wonderful things happen because of their advocacy... the ins companye's don't always follow the regulations properly. I even personally won a beneficiary's hearing where he was able to regain $5000 in past out of pocket costs and prospective coverage for his meds. Call them and see if they can help you

OMG!! Jamie!!! Thank you!! I will definately have him call them. I cant express how much this means to me!!! Thank you!!

yay for giving her the info!!!!!! omg I'm so sorry that you guys have to go through this. it's really eff'd up what the insurance companies are doing. it should be mandatory that he gets what he needs but instead they deny you. prayers for your poppa and hugs for you

Soon2BMrsAlini Posted: Apr 28, 2010 08:03 PM

Re: Good thoughts for my dad

Posted by Becca2010

Insurance companies really freaking scuk

LMAOOOO!!!! your post looks like your picture is saying it-lololol

StellaStar13 Posted: Apr 28, 2010 08:06 PM

Re: Good thoughts for my dad

my thoughts & prayers are w/you & your dad!

cateydee Posted: Apr 28, 2010 08:09 PM

Re: Good thoughts for my dad

Posted by JLWSJC

I'm really sorry he's going through this...

I did a legal internship for the MEdicare Rights Center in NYC. They are a non profit and have a hotline where anyone nationwide with medicare can get free information or advocacy help.

You can call on his behalf or he can call himself. 1-800-333-4114

I've seen wonderful things happen because of their advocacy... the ins companye's don't always follow the regulations properly. I even personally won a beneficiary's hearing where he was able to regain $5000 in past out of pocket costs and prospective coverage for his meds. Call them and see if they can help you

ETA, they're espcially helpful in guiding people through the convoluded appeals process and helping to make the appeals more effective. If you have any questions, let me know

i was just going to tell you about MRC. I have had a few trainings by the director and she was excellent. let me know if you need help.