Re: NWR: But I need some support right now...

What a beautiful boy! Have you checked out the nassau boces website...www.nassauboces.org? They offer a lot of different programs and they might also be able to get you in touch with some experts that can help. Stay strong for your boys...they are precious!

Re: NWR: But I need some support right now...

At 2 my son was diagnosed with PDD - NOS (on the autistic scale). We have enrolled him in AMAC and he has imporved leaps and bounds. It has taken me a looonnngg time to come to grips with his disability, and to behonest I am still not 100%, but it will get easier and there are a number of programs available to help. He has his next evaluation next week and I am worried sick what it will show. FM if you want to talk. I understand what you are going through!!

Re: NWR: But I need some support right now...

Re: NWR: But I need some support right now...

You have beautiful Son. Definatley do a lot of research. Make yourself knowledgeable about everything. My Son was evaluated and he needed speech and occupational therapy. It was discovered by his pre-school. I had him evaluated and now he goes to a school on Marcus Avenue and does great. There is so much they can do now with Autism. Good Luck and I'll say a prayer for him.

Re: NWR: But I need some support right now...

I'm very sorry to hear that news. My cousin is severely autistic (she's 16). My aunt has two other children (both born after) and neither of them have autism.

Re: NWR: But I need some support right now...

Re: NWR: But I need some support right now...

I'm sorry to hear what you are going through. My X-husband's girlfriends son has autisim. There are great support groups for that with a lot of information. I know she had her son in the StonyBrook program for awhile and that seemed to help him a lot. He also had a few other problems as well though.
for you

Re: NWR: But I need some support right now...

I am an occupational therapist and I currently have a few autistic children on my caseload. One of my children on the spectrum is doing fantastic they year in school!! There is so much out there that we can do for autistic children. Do you know where is he on the spectrum? More toward the severe end or toward the higher functioning end??

Re: NWR: But I need some support right now...

I worked with autistic children throughout college. # of them are currently enrolled in regular public schools. You wouldnt know anything was different about them. Some reading disabilities but thats it. The research going on right now is TREMENDOUS. Please dont think you hit a dead end. WHile I am sorry this happened to you, I would get 2nd, 3rd and 4th opinions as well as solutions for care.


I pray for your family
Nancy

Re: NWR: But I need some support right now...

They have made such big strides with autism that there is no need to worry. I would ask your doctor when is the earliest they can detect autism and have your baby tested. I would not worry about the baby though. You can cross that bridge when you come to it if need be.

Re: NWR: But I need some support right now...

Re: NWR: But I need some support right now...

my 7 year old is autistic and has come a looong way since he was three. i also have a four year old and a four month old and they are both fine!!! there is hope!!! best of luck to your family there is alot of information out there. you have fm.

Re: NWR: But I need some support right now...

I am a special ed. teacher and autism consultant. I now live in NC, but I worked on LI for 4 years and have a lot of wonderful contacts in the area of ABA. If you have any questions or need to figure out who to talk to next, FM me and I would be glad to help. You are in a GREAT area to get services for your son. (NC is strides behind NY!). The first thing you need to do is learn your rights and what services your son is entitled to and go get them! You will be his biggest advocate now and he will be an amazing inspiration to you and everyone who he comes in contact with
I am praying for you and your family.

Re: NWR: But I need some support right now...

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Posted by tara51799

I am an occupational therapist and I currently have a few autistic children on my caseload. One of my children on the spectrum is doing fantastic they year in school!! There is so much out there that we can do for autistic children. Do you know where is he on the spectrum? More toward the severe end or toward the higher functioning end??

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They say he is very high functioning, so much that his special ed. teacher who comes to the house every week was extremely shocked he was diagnosed. I'm not sure where on the scale he is; I called the Dr. who did the test this afternoon to try and find out but she wasn't in. I guess I'll try again tomorrow.

Re: NWR: But I need some support right now...

Thank you all for all your help and advice. I just wanted to let you all know that I did have Luke tested under the Early Intervention program shortly after he turned 2. This was right around the time he was also diagnosed with Epilepsy. He has been receiving speech and special ed. services for about a month now, and already I have seen improvement. What I didn't realize is that the symptoms of Epilepsy and Autism are so similiar.
He is currently seeing teachers from Just Kids Early Learning Center and they are fantastic! I know they have an Autism program, but it has a waiting list, so we are going to look into it.
I think I was more shocked and sad when I wrote the original post. I feel tons better now after reading all your posts and looking at the resources you've all sent. Thank you again so very, very much!

Re: NWR: But I need some support right now...

Re: NWR: But I need some support right now...

Make sure you take him to a specialist and get him into therapy early. THey can do wonders when the start asap.

I've slways heard though that autism isn't supposed to be diagnosed until age 6.

Re: NWR: But I need some support right now...

Please stay positive. we are all here for you

Re: NWR: But I need some support right now...

What a sweet little boy, he is adorable!

Re: NWR: But I need some support right now...

The women who've already posted are sooo right! There is so much progress and research in autism - they're really made tremendous strides and you are lucky to be in this area - the services here are outstanding! Good luck to you - and many thoughts and hugs and prayers for you and your family!